Muscular Dystrophy Coordinating Committee Meeting

Virtual | May 9, 2022, 1-5 pm EDT
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Also available on NIH videocast

Meeting Agenda- Muscular Dystrophy Coordinating Committee Meeting - 5/9/2022
Time Presentation
1:00 – 1:10

Introductions and general information

Glen Nuckolls, National Institute of Neurological Disorders and Stroke (NINDS/NIH), MDCC Designated Federal Official

1:10 – 1:40

Chair Presentation

Diana Bianchi, Director, Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD/NIH), MDCC Chair


Science Advances Supported by the Centers for Disease Control and Prevention (CDC)

Natalie Street, CDC

2:00 – 2:45

New Member Presentations

Denise Myler, Idaho Caregivers Alliance and the Idaho State Independent Living Council

Eric Wang, Myotonic Dystrophy Foundation and Center for Neurogenetics, Univ Florida

Chris Anselmo, Muscular Dystrophy Association

2:45-3:00 Break
3:00 – 4:55

“Repurposing Approved Drugs and Previously Deprioritized Compounds”

Session Introduction
Glen Nuckolls, NINDS/NIH

Repurposing of Drugs for the Treatment of Duchenne Muscular Dystrophy
Lee Sweeney, University of Florida

Drug Repurposing Projects by the NCATS Therapeutics Development Branch
Elizabeth Ottinger, National Center for Advancing Translational Sciences (NCATS), NIH

Creating Value through Clinical Repurposing
Barbara Goodman, Cures Within Reach

Repurposing in Muscular Dystrophy: Lessons from FDA/NCATS CURE ID and the CURE Drug Repurposing Collaboratory (CDRC)
Heather Stone, Center for Drug Evaluation and Research, U.S. Food & Drug Administration


4:55 - 5:00 Closing Remarks
Diana Bianchi, NICHD/NIH
5:00 Adjourn


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