Muscular Dystrophy Coordinating Committee Meeting

Virtual | 1- 5pm EDT   
Watch the Videocast


Meeting Agenda- Muscular Dystrophy Coordinating Committee Meeting - 10/3/2022
Time Presentation

Introductions and Meeting information

Glen Nuckolls, National Institute of Neurological Disorders and Stroke (NINDS/NIH), MDCC Designated Federal Official (DFO)


Chair Presentation

Diana Bianchi, Director, Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD/NIH), MDCC Chair


Seeking input on the Fiscal Years 2025-2029 NIAMS Strategic Plan

Lindsey Criswell, Director, National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS/NIH)


Meeting Reports

Cure CMD 2022 Scientific and Family Conference
Gustavo Dziewczapolski, Cure CMD

Cardiac in Duchenne: Where we are and where we are going?
Dejpanjan Nandi, Nationwide Children's Hospital
Chet Villa, Cincinnati Children's Hospital Medical Center
Linda Cripe, Nationwide Children's Hospital

2:30-2:45 Break

Innovative Outcome Measures for the Muscular Dystrophies

Session Introduction
Glen Nuckolls, NINDS/NIH

Lived Experience
Donavan Decker

Using Computer Vision to Quantify Movement
Linda Lowes, Abigail Wexner Research Institute at Nationwide Children's Hospital

Quantitative Video Assessment in Neuromuscular Conditions
Mindy Leffler, Casimir, LLC

AI-enabled Shoe Insoles to Assess Walking Function in SMA and DMD
Damiano Zanotto, Stevens Institute of Technology

4:30-4:40 Update on Respiratory Complications of the Muscular Dystrophies, NOT-HL-22-025
Aruna Natarajan, National Heart, Lung and Blood Institute (NHLBI/NIH)
4:40-4:50 Update on Wellstone Muscular Dystrophy Research Centers Program, RFA-AR-23-001
Emily Carifi, NIAMS/NIH
4:50 Closing Remarks
Diana Bianchi, NICHD/NIH
5:00 Adjourn
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