Muscular Dystrophy Coordinating Committee Meeting

10am - 2pm EDT


Time Presentation

Introductions and general information
Glen Nuckolls, PhD, National Institute of Neurological Disorders and Stroke (NINDS/NIH), MDCC Designated Federal Official


Chair Presentation
Diana Bianchi, MD, Director, Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD/NIH), MDCC Chair


New Director Presentation
Lindsey Criswell, MD, MPH, DSc, Director, National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS/NIH)


New Member Introduction
Emily Freilich, MD, Food and Drug Administration (FDA)


Respiratory and Sleep Complications of Muscular Dystrophies

  • 11:15 Patient Perspectives
    Donavon Decker
    Dan Perez
  • 11:35 Respiratory and Sleep Complications of the Muscular Dystrophies
    James Kiley, PhD, National Heart Lung and Blood Institute (NHLBI), NIH
  • 11:55 “Using MD STARnet to Understand Respiratory and Sleep Complications and Care in People with Muscular Dystrophies”
    Natalie Street, PhD, Centers of Disease Control and Prevention
  • 12:10 “Managing Airway Clearance in Neuromuscular Weakness: Clinical and Research Implications”
    Jonathan Finder, MD, University of Tennessee Health Science Center
  • 12:25 “Mechanical Ventilation in Neuromuscular Disease: Understanding and Ramifications”
    Hemant Sawnani, MD, Division of Pulmonary Medicine, University of Cincinnati
  • 12:40 “Advancing Inspiratory Muscle Training and Non-Invasive Ventilation Adherence”
    Matthias Boentert, PD, MD, Department of Neurology, Münster University Hospital, Münster, Germany
  • 12:55 “Novel Therapies and Respiratory Pathology in Muscular Dystrophies”
    Mai ElMallah, MD, MS, Department of Pediatrics, Duke University

Discussion of Respiratory and Sleep Complications of Muscular Dystrophies
MDCC committee members and meeting participants


Closing Remarks
Diana Bianchi, MD, NICHD


Did you find the content you were looking for?
Please rate how easy it was to navigate the NINDS website

This site is protected by reCAPTCHA and the Google Privacy Policyand Terms of Serviceapply.