12:00 PM - 4:00 PM ET
Virtual Only
Webcast Live
Meeting Agenda
Time | Presentation |
---|---|
12:00 PM – 12:15 PM |
Introductions and Meeting Information |
12:15 PM – 12:35 PM |
Chair Presentation |
12:35 PM – 12:50 PM |
Group Discussion |
12:50 PM – 1:05 PM |
New member nominee presentation |
1:05 PM – 1:30 PM |
Meeting/Conference Reports EveryLife Foundation – Rare Disease Week, Feb 25-March 1, 2024 |
1:30 PM – 1:50 PM | Rare Diseases: Considerations for the Development of Drugs and Biological Products Guidance for Industry Cynthia Welch, Office of New Drugs, Center for Drug Evaluation and Research (CDER), U.S. Food & Drug Administration |
1:50 PM – 2:00 PM | Break |
2:00 PM – 3:50 PM |
Exercise in Muscular Dystrophies: Current Understanding and Future Directions “Gaps: Maximizing Health Potential Through Exercise Impact on Neuromuscular Disorders and Clinical Trials”
“The Molecular Transducers of Physical Activity Consortium (MoTrPAC)”
|
3:50 PM – 4:00 PM |
Closing remarks |
4:00 PM | Adjourn |